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Tuesday, February 15, 2011

Days Moving Slowly

Maybe if I write in red things will move guess not! I feel as though I have traveled through the rabbit hole, falling into a deep, dark abyss except I am not following any dam white rabbit!

Alice In Wonderland I am NOT! I guess it's just the mental state I am in right now....the last two years have been exceptionally rough, physically and mentally. If all this crap makes you stronger I should be coming out of it like tungsten Hey, my first husband sold steel, some of his customers were West Bend and Werner Aluminum Ladder fact the owner of Werner (Leo Werner) came to our wedding in Japan. Oh, so many years ago.

When Tom & I moved back to the states and bought our first house in New York, Leo surprised us with a delivery of every type of ladder you could imagine that you would need to work on a house...little ones for indoors, larger ones for painting and huge ones for working on a three story house! Leo was one of the nicest millionaires that I ever met in my life. When he opened the new plant in Ohio Tom & I visited for the opening ceremonies, it was a beautiful building. Later we met his wife at his house and viewed his huge, huge bottle was awesome.

Sometimes I wonder if I look at possessions the same way as others do. One by one, down the through the years the ladders disappeared. Either lost in a move, forgotten in the packing, until almost forty years later there was only one left. It was my favorite ladder too, it was the one that I stood on to hang curtain rods, to paint & wallpaper my babies rooms, the kitchen, living room. The ladder was ugly to look at by this point, with bits & pieces of paint flecks and other more insidious droppings of Spackle, etc. But it was my favorite, easy to fold and carry, and lightweight enough for me.

However, at this point I was married to my Joe and he was a carpenter. That being said he loved tools, big tools, little tools and my dam little ladder. So it was on a sad day about three years ago...I lost my last, favorite little ladder...he left it on a job only to return the next day to find it gone. So Joe went out and bought me a new version of the Werner Aluminum paled in comparsion to my little ladder. But I accepted the offer and it now sits locked inside my shed...keeping Joe's fold-any=which-way ladder company!

Funny how one word - steel - can take you back.

Monday, February 7, 2011

Fighting A Battle

Today is chemo treatment #2 for Larry - this morning it was radiation as usual he is in his fourth week of radiation for throat cancer. His prognosis is good..they give him an 80% cure rate. It is an uphill battle to keep his weight up, so far the radiation doctor is happy with his weight, Larry wants to avoid having a feeding tube placed at all costs, doesn't want it.

It is actually a good think that Larry was overweight to begin with. He started this whole cancer trip at about 260 he weighed in at 232 lbs. The radiation/chemo treatments are rough on your system, the fact that the tumor is at the back of his tongue doesn't help with the eating/swallowing factor.

Larry is kind of a straight up guy, made hardened by the mean streets of New :York...he calls it as he sees it. Refuses pain meds, even after having to have his teeth removed in order to avoid major problems from the radiation. I guess if the pain gets really bad he will cave - maybe.

Anyway, Monday to Friday for seven weeks...radiation therapy and on the 45th day the last round of chemo.

we all are on edge trying to do our best to keep his morale up, feed him well...and keep him alive. I feel at least Barb has a chance at saving her hubby, I didn't get a chance....

Sunday, February 6, 2011

Sent to Mary Focarino Gallagher

Written by Joe Doscher as a thank you to Mary & Coleen...

I left it the way he his own way, his way of talking.....

‎"year's ago i met a lady,a person of brightness.she alway's looked for the silver lining.time's would be bad or worse,but she would still smile like a candle on the darkess night.proud to stand with her.we have had our time's.good bad terr...ible and great.three did we raise,three that i am proud to call our's.our daugter while growing up,alway's had her friend's up anytime,stay all the time,sleep over.they would drive me out of my mind.never knew who would be in the house.morning would be a trip,really steping over them,because they stayed up alnight watching lady would only smile at my complaint's,who ate my lunch ,who's pant's are these,what happen too the cookie's,what do you mean i have to pick them up.drove me she would and a small laugh,my lady would say they are here,they are good what more could we ask. 20+year's have gone bye,while vist'ing our daughter suffer'ed heart failure.these pain in the ass,rotten,loud ,annoying,girl fiend's where there.ladie's of brightness they had become.long drive from picking me up at the airport,not a short trip,a hard hug and a tear,a small smile of hope.stood tall they did.helping,in every way.with them there i knew my daughter was in good hand's.the comfort they gave just by being there. thank you colleen and mary may you have children who have friend's like you. thank you" Joe

Thursday, February 3, 2011

Difficult Days

I guess I have been pretty lucky finding myself well insulated from experiencing the death of close relatives. Oh, of course, I lost my beloved Grandparents on each side when I was in my thirties. Even then, because of the longevity in our family they had lived well beyond the norm. Right now my Dad is 94 and my Mom is 90...and actually pretty healthy living at home with my sister and BIL.

My beloved Joe died in June, 2010 - my cousin Millie just passed a few days ago, my second cousin Evelyn died last month, we are fighting for my BIL Larry life as I write this, my other cousin in Washington Tina is doing the same for her husband Fernando...I pray to God that a total cure for all cancer could be found and please God now.

Life started on a downturn with my getting pneumonia when I flew up to New York in December 2008......Of course, I don't remember anything but they tell me I died and had to be coded 6 times before my heart would return to normal. Everything else had shut down too, so I had to undergo blood transfusions, and also dialysis every other day for weeks. My kidneys never did recover completely...they only process at 2/3 the rate they should, so I have to be careful what I eat, drink and do. I also suffered heart problems too so they put me in the cardiac unit to be watch...I was hooked up to so many lines that I could not move too much - the only things on my body that I had control over were my feet and I kept moving them up and down and sideways. I was in intensive care for over a week, mostly unconscious and the doctors kept telling my family that I most probably would not come out of it because I had been oxygen deprived for so long.

The first vivid memory that I have is opening my eyes to see my lovely daughter Alisa..saying "Mom, Mom..Mom's awake!" to all the others in the room...she ten put her hand up in front of my face and asked how many fingers do I have up? I answered her...then her next question was " you believe in Vampires"...I know I shook my head yes...Alisa started yelling..."Mom's Back! Mom's Back!".....oh, but what a road was yet to come....

Poor Joe never left my side, he had to be pulled away to go home to take a shower, eat.....he massaged my feet, my back, rubbed what he could on my arms trying to keep my circulation helped. They had really done a number on me with all the lines put in and had actually blown a hole in the top of my hand - my arms and hand were like huge balloons and extremely hot. Alisa had brought in some heavy hand towels so we soaked them in cool water and applied them to my hands and arms...I did this helped so much I was able to reduce the swelling a lot.

I had also caused damage to myself when I awoke in the ICU with the breathing tube still my delirium I thought I was drowning and some alien was trying to get down my I reached up and yanked the tube out...not a good thing to do. I hurt my throat so that for almost a month I had to use ice chips to soothe a result I now have a soft growth right where I did the damage by my thyroid.

I was in that hospital bed for over 35 days and they only got me to sit up two times, as a result I lost most of my muscle mass so I could not stand or sit up or walk on my own. I felt like a newborn baby. They decided I was well enough to be transferred to a rehab place...well, the place was actually was dead of winter arrived by ambulance cold and tired. The attendants there insisted as soon as they got my coat off that I should strip for a shower...I told them I was freezing could they wait till I felt a little warmer? The answer was NO! So the two of them bullied me into the shower in a special wheelchair, started the water - it was not even warm.....that's the last thing I remember...I evidently passed out, scared the crap out of them...they had to get the paramedic's back in and I was transferred to a lovely Catholic hospital...again ICU. Turns out I was coming down with another bout of pneumonia...oh all through this I have been on oxygen too.

The doctors at this hospital were wonderful, they had me diagnosed with COPD within two days, and cured of the pneumonia in eight days. They also, even with all the lines in, had the nurses get me out of bed into a chair and a side potty...the joy of even sitting up is unexplainable unless you have been paralyzed you would not know..

The only scary part was my hand were still bad, it was difficult for me to use a fork or day trying to do it I dislodged a main line that was into an artery....I kept pressure on it but could not reach the button to call for I lay there screaming for help...luckily a man was visiting next door and went for help for me....I had visions of bleeding out in the bed....still scares me now. The nurses were able to control it and I got yelled at for it...but the shunt wasn't put in properly I think. In the first hospital, my youngest son Joey came every day to feed me and he would stay till dinner time and he did this for thirty day, bless his heart such a good son. My daughter Alisa came and brought me special foods that she thought would help me heal better...nothing tasted better than her Italian Wedding Soup!

After I healed a bit, they wanted to send me back to that awful place where I passed out...I absolutely refused to go there. I felt the attendants should have at least listened to me instead of rushing me into a cold shower. Thankfully my daughter found a wonderful Jewish Nursing Home on Long was old but comfortable and clean. The nursing staff and attendants were loving, caring people and I cannot say enough for the rehab staff. I arrived (with daughter following me this time) late one night and they took their time to get me settled into the room. Yes, I did need a shower but the attendant asked me if I was up to it, did I feel alright? And the water was warm/hot makes such a difference. All I can say is I arrived there unable to sit up or turn over...and three days later they had me up in a wheelchair do strengthening exercises with the rehab staff.

I arrived there on February 4th and was determined to be back home at my daughters by her birthday on March 9th. It was an uphill battle but I was able to walk, using a walker, out of the nursing home on March time for her was great to start to feel a bit normal again.

I had some strange experiences in the hospital and the nursing home...In the hospital the first roommate that I had came from Clearwater Florida just above where I had been living. The nurse came from a section on 49th street in Pinellas Park just a hop-skip from where I lived. Then when I got to the nursing home...there was an elderly lady in the bed next to me, she had dementia. The next day a middle aged couple came in to visit her and they looked vaguely familiar to me. They introduced themselves and said they came from Richmond Hill, I said that's where I was from before moving to Florida...110th St...they looked at each other and said...we live on 110th St off of 109 Ave....turns out they lived three doors from me..their daughter was our newsboy..the man was the guy who used to put all the block parties of course they looked familiar! For some reason the elderly woman could talk to me, she remembered her daughters name and told me stories from years ago. It was around Valentines day so I asked Alisa to bring a stuffed bear for her...she had nothing in her bed to amuse her or to hold on to. The bear worked like a charm, she would sing to it like it was a baby and it calmed her down too. She had fallen at home and broken her hip, she was recuperating but her daughter was afraid that she could not be on her own at all anymore...both of them had to work..before the fall they had hired a sitter to come in for part of the day and look after her...but her condition was getting a lot worse. But I thought what a strange thing to happen...I move away from a place for 24 years only to find myself in a room with an ex neighbor - where does that happen? I felt comforted in that I was able to make this lady's life a little more happy....

This has been a rambling entry - sorry folks...but life sometimes just rambles....